Autism Rates Per State - updated

Most children diagnosed with an Autism Spectrum Disorder (ASD) are diagnosed around ages 3-4. ?Sometimes the diagnosis can be delayed, but almost all children are diagnosed by age 6. ?There is absolutely no scientific evidence that links autism and vaccines. ?Vaccinations are not the cause for the rise in ASD diagnosis. ?In fact the original study linking vaccines and autism has been retracted from the original medical journal that published it, and the doctor who has published the paper has been disbarred from medicine in the UK. ?The ABC news article stating this can be found here: ?ABC News

http://abcnews.go.com/Health/AutismNews/autism-vaccines-lancet-retracts-controversial-autism-paper/story?id=9730805#.T6J2Gu18DfA

The CDC released new information about the autism epidemic on March 29, 2012. ?Now 1 out of 88 children are diagnosed with an Autism Spectrum Disorder (ASD). ?This is up from 1 out of 110 children just a couple of years ago. ?We have a serious problem. ?Autism is the fastest growing childhood disorder to date.

Autism Statistics 2000 - 2008

2000 ?1/150

2002 ? 1/150

2004 ? 1/125

2006 ? 1/110

2008 ? 1/88

?

I am updating the information with the new report. ?I left the information on the chart from 2006. The 2008 in the last column indicates the updated CDC data released March 29, 2012.

I'm pulling this information from the CDC website on March 29, 2011. ?
CDC. Community Report From the Autism and Developmental Disabilities Monitoring (ADDM) Network. ?2008.

http://www.cdc.gov/ncbddd/autism/documents/ADDM-2012-Community-Report.pdf

Public Schools 8-year-olds

State

2006

2008

Alabama

1/227

1/210

Alaska

1/212

Arizona

1/153

1/64

Arkansas

1/224

1/95

California

1/128

Colorado

1/273

1/85

Connecticut

1/99

D.C.

1/178

Delaware

1/160

Florida

1/155

1/139

Georgia

1/145

1/84

Hawaii

1/206

Idaho

1/185

Illinois

1/158

Indiana

1/106

Iowa

1/718

Kansas

1/219

Kentucky

1/181

Louisiana

1/295

Maine

1/80

Maryland

1/127

1/80

Massachusetts

1/107

Michigan

1/128

Minnesota

1/67

Mississippi

1/317

Missouri

1/140

1/72

Montana

1/233

N. Dakota

1/219

National Avg

1/110

1/88

Nebraska

1/168

Nevada

1/124

New Hampshire

1/138

New Jersey

1/114

1/49

New Mexico

1/275

New York

1/151

North Carolina

1/140

1/70

Ohio

1/158

Oklahoma

1/309

Oregon

1/77

Pennsylvania

1/105

1/75

Rhode Island

1/104

S. Carolina

1/217

1/90

S. Dakota

1/199

Tennessee

1/205

Texas

1/163

US & Outlying

1/143

Utah

1/175

1/47

Vermont

No data

No data

Virginia

1/127

W. Virginia

1/193

Washington

1/159

Wisconsin

1/120

1/129

Wyoming

1/149

I found the 2006 information on http://www.fightingautism.org/idea/autism-state-rankings-prevalence.php . I copied the information on June 24, 2010.

The information with a 2008 next to it was copied from the CDC http://www.cdc.gov/ncbddd/autism/documents/ADDM-2012-Community-Report.pdf. I copied the information on March 29, 2012.


Looking for Bands for Autism Events in Tacoma and Seattle


Upcoming Classes for Resources for Special Needs Children jan-mar 2009

The Lake Washington School District PTSA Special Needs Group holds monthly meetings with speakers/topics. Below is info on the Jan 27th meeting along with other resource info sent from the Chairperson.

Chairperson, Beth Angelo, sends out a lot of good resource info / meeting notices / workshop info. You can request to join at: lwsdptsasng(at)yahoogroups.com My understanding is you do not need to be in LWSD to join the email group.

Our January 27th meeting will feature two great speakers.

Our topic for this meeting will be Special Education Law presented by Christine Thompson Ibrahim, from the Law Offices of Larry A. Jones.

· This is a great chance to learn about special education law from a professional, so that you can be a better advocate for your child’s rights. Special education law forms the foundation of your child's program, so come and join us to learn more!

We are also honored that Margaret-Lee Thompson, the force behind the King County Parent Coalition, will be on hand to talk about resources for parents and transitioning to the workplace. She is an amazing resource and will have some great info for us!

Meetings are held at the LWSD Resource Building

16250 NE 74th St, Redmond 98052
(Redmond Town Center)

Call 425/702-3200 for directions

7:00-8:30 PM
------------------------

Wrightslaw Special Ed Advocate: "Discipline & Children with Disabilities" http://www.wrightslaw.com/nltr/09/nl.0102.htm

Education Forum: SHORELINE- State Rep. Ruth Kagi hopes a major community education forum slated for Tuesday evening, Jan. 6, will give local residents a head start in understanding and weighing in on key education-funding issues that lawmakers will face in 2009.
The Tuesday evening forum is scheduled for 7 p.m. in the Community Meeting Room of the Northshore Public Utility District facility, which is located at 6830 NE 185th St. in Kenmore.
Kagi, a Shoreline Democrat, is co-sponsoring the forum with the Washington State PTA and League of Education Voters to give parents, teachers and others an inside view of the findings and recommendations of the Washington State Basic Education Funding Task Force.
"We need our local communities to have a strong voice in decisions that will shape the future of education here and throughout Washington, and this forum will help," said Kagi.
State Rep. Ross Hunter, D-Medina, will be at the forum to provide an inside look at the work and recommendations of the Basic Education Funding Task Force. Hunter is a key member of the Task Force who also chairs the House Finance Committee in the State Legislature.
Citizens attending the forum will also have an opportunity to hear the perspectives and ask questions of Scott Allen, the Vice President of the Washington State PTA, and George Scarola, the Legislative Policy Director for the League of Education Voters.
"This will truly be a community discussion on education, and not an event where people are just talked at," Kagi said. "We will all be fielding questions and comments at the forum, and the public perspectives I hear will be invaluable as I prepare for the legislative session that starts on Jan. 12." (Thank you Wendy DeLong)
------------------------------------------

Positive Discipline Classes and Trainings. taught by Melanie Miller, M.Ed., Parent Educator and School Counselor

Positive Discipline teaches important social and life skills: respect for self and others, problem solving, and cooperation, as well as the skills to contribute to the home, school, or larger community.

Positive Discipline Class

Seven Session class beginning January 27th, 7-9pm at Woodinville Montessori School in Woodinville. Tentative Class dates (Class dates to be confirmed after January 5th) January 27th, Feb. 3, 10, 24 (no class on 17th), March 3, 10, 17.

To register: Contact Melanie at: melanie_miller(at)verizon.net or 206.579.2172.

Positive Discipline Class, Part II!

A One night advanced class for anyone who has taken a seven session Positive Discipline Parenting Class. Individual class will be offered four times per year. Come learn some new tools, review the concepts of PD and enjoy the support and encouragement of other parents. Each class will include several “Parent Helping Parent” activities. Monday, January 12, 6:30-8:30 pm.

To register: contact me at melanie_miller(at)verizon.net or 206.579.2172. This class will be held in my house in the North Rose Hill area of Kirkland. $20/person, $25/couple.

Teaching Parenting The Positive Discipline Way

A training for Counselors, Parent Educators, Social Workers etc. Learn how to use Positive Discipline with your community of parents. Developed by Lynn Lott and Jane Nelsen, Teaching Parenting provides a step-by-step approach to starting and leading experientially based parenting groups. This program stands alone or offers significant enhancement to any program through experiential activities that reach the heart to inspire deeper understanding and change. February 26th (evening), 27th, 28th (9-5) , Kirkland, WA.

To register, see website www.posdis.org (Thank you Melanie Miller)


Special Child Exchange

This is directly copied from an email I received today about this yahoo group.

http://groups.yahoo.com/group/SpecialChildExchange/


Description

Welcome to the Special Needs Exchange
Buy. Sell. Wanted. Recycle

This is the yahoo group for SpecialChildExchange.org. The sole purpose of this group is helping one another in the form of recycling all forms of equipment and supplies that we use on a daily basis.

The SCE is a personal ministry by Steve Gay, a father of two. Steve was aware that many families with special needs children struggled daily, and many families fell through the cracks, neither qualifying for assistance nor having adequate private medical insurance that would cover the expensive equipment and daily supplies a child needed. In garages and basements were stored previously loved but outgrown wheelchairs, standers, walkers, and toilet chairs that other children needed. The problem was that parents, organizations, and professionals didn't know how to access it. That is how SCE began. The SCE originally started out as a group of underserved special needs parents from around the U.S. on a Yahoo list exchanging support, recycling outgrown durable medical equipment and sharing information on affordable and surplus supplies. Over time special education teachers, therapists, clinics started asking for help finding donated equipment to improve the lives of the children they worked with. As word spread and the listserv grew it became obvious that special needs children around the nation had unfulfilled basic needs, and that, parents joining together could help each other.

The SCE is based on very simple principles.

1. Do unto others as you would have them do unto you.
2. Give and it will be given to you.
These principles will always stay at the core of SCE.


Watch KCTS 9 tonight Dec 5

(Mercer Island, WA – December 2, 2008) - Children's Institute for Learning Differences (CHILD) is highlighted in the December 5 airing of KCTS 9 Connects at 7:30 p.m. The topic is children with autism. The documentary section was filmed on location at the Mercer Island independent day school that serves children ages 3-17 years who have special education needs. Children with autism, Asperger's, ADHD, sensory integration issues, bipolar disorder and other challenges who find it difficult to cope with the daily activities in the public school find success at CHILD.

Students from as far away as Marysville, Camano Island, Tacoma, Puyallup and throughout the Puget Sound Region, travel to CHILD daily to learn new skills. With the incidence of autism now 1 in 150 children (1 in 95 boys), the school has found its approach to learning to be so effective that most children return to their public school within 2-3 years. KCTS 9 captures the methodology used at CHILD through interviews with parents, students and staff.

KCTS 9 Connects is a weekly exploration of news, politics and culture in the Pacific Northwest. Award-winning journalist Enrique Cerna leads a program that tackles new, provocative and emotional topics important to people in the Northwest and British Columbia. Through powerful storytelling, KCTS 9 Connects brings you the compelling people and critical issues that affect your life. The mission is to expose new stories you didn't know; to explore issues from new perspectives you haven't seen; and to provide new insight from diverse voices you haven't heard.

#####

Children's Institute for Learning Differences (CHILD) is an independent, non-profit therapeutic day school dedicated to illuminating potential and creating possibilities for children with special needs, their families and concerned professionals. CHILD provides a safe place where children ages 3-17 years and who are vulnerable to learning and social failure, can be successful in school, at home and in life. CHILD incorporates social and emotional learning in all their programs and services. To learn more about CHILD, visit www.ChildrensInstitute.com.

Contact: Trina Westerlund
Founder & Executive Director
trina@ChildrensInstitute.com
206.232.8680

Beverly Jacobson
Director of Community Relations
BeverlyJ@ChildrensInstitute.com
206.232.8680


Help Get Autism Insurance in Washington State

The autism insurance reform movement in Washington State is ramping up to achieve coverage for children with autism this year.  We need everyone's help! 

Volunteers in four other states - Arizona, Florida, Louisiana and Pennsylvania have been able to achieve insurance coverage for their children this year!  A total of seven states now meet standards of appropriate coverage, ending autism insurance discrimination and covering treatments and therapies that are medically necessary for our children, such as speech, occupational therapy, and applied behavior analysis (ABA) therapy. 

HOW CAN YOU HELP IN WASHINGTON STATE? 

1. VISIT the AutismVotes.org website and register to receive advocacy alerts.  This will ensure that you receive the most updated information as quickly as possible. 

2. EMAIL Autism Speaks if you are interested in serving as a District Captain to lead efforts in your own home district, attend rallies, speak with state legislators, attend hearings at the capitol and help us spread the word.

3. FORWARD this to your family, friends, neighbors, teachers, therapists and co-workers...anyone who lives in Washington State that would be interested in helping you work to end insurance discrimination for children with autism statewide! 

For more information on the autism insurance reform effort in Washington State, visit http://www.autismvotes.org/washingtonstate


Autism Guidebook for Washington

Autism Guidebook for Washington State:

http://www.doh.wa.gov/cfh/mch/Autism/guidebook.htm

SUBJECT: For Your Information:

Autism Guidebook for Washington State: A Resource for Individuals, Families, and Professionals

The Children with Special Health Care (CSHCN) program is pleased to announce the release of the Autism Guidebook for Washington State: A Resource for Individuals, Families, and Professionals. This resource was developed through the efforts of the Caring for Washington Individuals with Autism Task Force (ATF), a Governor appointed group comprised of parents and professionals, established in 2005 by the Washington State Legislature and staffed by the CSHCN program. The Legislature instructed the Autism Task Force in 2007-2008 to “Compile information for and draft a Washington State Guide for Individuals with Autism—Birth through Lifespan described in the task force's 2006 recommendations.” Patterned after the Ohio Service Guidelines for Individuals with ASD/PDD Birth through Twenty-One, this book contains a wealth of relevant information for families, educators, medical professionals, care providers, and others who make informed decisions about individual care of children and adults with Autism Spectrum Disorder and related disorders. Because autism is a complicated Neurodevelopmental disorder, assisting individuals in finding information and systems navigation in Washington State was a primary goal of the guidebook. This manual will be used in training exercises across the state as part of the Autism Awareness: Partnership for Change grant activities beginning before 2009.

Currently, the guidebook can be found on line at http://www.doh.wa.gov/cfh/mch/Autism/Autism.htm under published reports. The guidebook is over 200 pages of information and is accessible as one entire document download or by chapters http://www.doh.wa.gov/cfh/mch/Autism/guidebook.htm . On the same page is an additional and important survey tool which will gather input from you on who is using this manual, why, and how it could be more useful. Please take the time to give us feedback through the evaluation tool. The survey will be available for several months, takes just a few minutes, and is a good way to let us know your feelings on this legislative mandate.


Autism : study to determine correlation between heavy metal exposure and biomarkers

There is an opportunity to participate in a study that measures a biomarker that is believed to be associated with exposure to heavy metals and the onset of autism. (This is my layman’s interpretation, so don’t laugh too hard ;-) The net of it is that you enhance the science around autism and that you get a test done for free that costs a very pretty penny (and is only done in France). More info below.

---------------------------------

Northwest Porphyrins Study Recruiting Participants

Caregivers invited to enroll neurotypical children and children with autism

Mercury and some other environmental toxins are known to cause elevated levels of metabolites in the urine called porphyrins. The purpose of this study is to determine if porphyrins are elevated in the urine of children with autism in comparison with neurotypical children of the same age. If we find that children with autism do have elevated porphyrin levels, we may be able to better identify environmental causes of autism and recommend additional treatment strategies for children with this disorder.

Eligibility Criteria:
Caregivers must be willing to collect urine samples from their children. Autistic and non-autistic children ages 2-12 years are needed; siblings are allowed to participate.

Compensation:

Porphyrin assay results will be provided for free to caregivers of all participants via e-mail at a future date.

How can I participate? Contact a coordinator to obtain a vial, consent form and instructions:
Caregivers are required to sign a consent form and obtain vials in person at pickup/drop-off locations in Seattle and Tacoma. Instructions are provided with the vial upon enrollment.
Once the vial is obtained, caregivers must complete a brief online registration (password and instructions are provided with vial at enrollment), collect first or second morning urine void, freeze the filled vial and return it (frozen) to a drop-off location.

Seattle:
Jason Allen ND, MPH – Co-Investigator
Seattle Integrative Medicine

5322 Roosevelt Way NE

Seattle, 98105

206-525-8012
drjnd at u.washington.edu

Tacoma/South Sound:
Denise Fulton, M.S. - Study Coordinator

10 a.m. to 1 p.m. Sat. Dec. 20th or Jan. 17th - table offered outside the meeting of Talk About Curing Autism – S. Campus Bates Technical College, 2201 S 78th St. Tacoma

denise at autism.com

Chief Investigator:

James S. Woods, Ph.D., Professor, DABT Director, Toxicology Program Department of Environmental and Occupational Health Sciences School of Public Health and Community Medicine, University of Washington

Funding and Support Provided by:
National Institutes of Health (NIH), Wallace Research Foundation, The Autism Research Institute (ARI)

View and print the study flyer:
http://autism.com/ari/woods-porphyrins/flyer.pdf

Jason Allen, N.D., M.P.H.
Senior Fellow
Department of Environmental & Occupational Health
University of Washington,

Seattle, WA, USA
drjnd at u.washington.edu


Autism and Special ed : Wa state : opportunity to influence governor's budget decisions

Governor Gregoire is welcoming input as she considers the cuts that she is going to make in the state budget. This may be a good occasion to remind her of what NOT to cut, such as special ed services. If you have a few minutes, please drop her a line advocating for our kids at http://governor.wa.gov/contact/default.asp

Here’s more info

--------------------------------------------------------------------

Here is a message from the LWSD PTSA re Gregoire's desire for public input on budget priorities

"Here is a wonderful way to speak up for what you believe in. The governor is inviting the citizens of this state to visit her web site and tell her what you think should be cut in the state budget to deal with the pending deficit. This would also be an ideal time to let her know where you DO NOT want budget cuts.

What a rare opportunity to communicate directly with our executive. Don’t let this golden opportunity pass you by!

Wendy DeLong, LWSD PTSA President"

CHRISTINE O. GREGOIRE, Governor

STATE OF WASHINGTON, OFFICE OF THE GOVERNOR

P.O. Box 40002 . Olympia, Washington 98504-0002 . (360) 902-4111

For Release: Immediate Media Contact: Governor's Communications Office

Date: Nov. 14, 2008 Phone: 360-902-4136

Gov. Gregoire seeks public input on budget priorities

Gregoire adds new public input feature on website - www.governor.wa.gov/

OLYMPIA - Gov. Chris Gregoire today is urging Washingtonians to visit her website and offer suggestions as she works to fill a multi-billion dollar budget shortfall.

"Just like Washington families, state government is facing serious economic challenges," Gregoire said. "Unfortunately, we don't have the money to fund all of the many programs and projects we have supported in the past. We're all going to have to sacrifice, but it's also important to preserve core government services and to take full advantage of the strengths of our community organizations and the private sector."

All Washingtonians are encouraged to visit Gregoire's homepage at www.governor.wa.gov/ and submit their own cost-saving strategies. The governor is also looking for suggestions to reform state government and to provide services more efficiently and cost-effectively. In addition, the governor wants to know what government functions and programs might be better handled in the private sector or the nonprofit arena.

"If you know of an effective strategy to significantly trim costs, I want to hear from you," Gregoire said. "It is becoming clear that we will need to cut spending and rethink the way we provide services to responsibly balance the next budget."

Gregoire has already taken significant steps to cut the projected $3.2 billion dollar deficit nearly in half, including:

Placing a freeze on hiring, out-of-state travel, personal service contracts and equipment purchases.

Across-the-board cuts in state agencies, exempting certain programs in education, public safety and the protection of vulnerable individuals.

Suspending the Family Leave program.

The governor plans to unveil the 2009-2011 budget next month. For more information, visit Gregoire's homepage at: http://www.governor.wa.gov/


Role:One Performing for the Autism Speaks Benefit Sept 23

Link: http://www.youtube.com/watch?v=vYV45okDx2c

My guitar teacher Bob also raps!


Alexa sings Star Spangled Banner

Link: http://www.youtube.com/watch?v=JgzvDhoMoNI

She opened the ceremonies for Autism Speaks at Dempsey Arena on the UW campus. What an amazing job! She's 11 and she's autistic.


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